Stella Grant's Not-So-Secret CF Blog

Sorry I have not posted in a while. There has been a lot of stuff happening in the hospital lately so I have had no time to myself. First Will and I have gotten a little closer! We went on a little bit of a date recently. And I finally stole something back from Cf. One foot. From now on Will and I stay five feet apart. Good-bye to six feet. It was a lot of fun and we did not get caught. At least not that we know of. We had fun together and now know each other more. He found out that Abby was dead and made me feel a little bit better about the situation. Will, Poe, Barb, and Julia are more support team. Now the next thing on the agenda. Happy Birthday to Will! He is finally 18 and can now be in charge with what is happening. I hope he had the best surprise party ever! Poe and I came but stayed six feet apart. The table made sure of that! Mya and Camila a.k.a my two best friends came and Will's friends Hope and Jason came too! Poe made food for us all to eat and I have to say he is a...

One of the three authors that turned my life into a book is Rachael Lippincott. Born in Philadelphia and raised in bucks county. This talented person has a BA in the amazing English writing. Five feet apart was her first book. She now owns a food truck with her partner. If you ever end up in Pittsburgh go to their food truck Lone Wolf Grill. Rachael hopes that this book will be able to open peoples eyes on cystic fibrosis. Another of the amazing writers that wrote about my life is Mikki Daughtry. From the warm Atlanta Georgia. Mikki graduated from Brenau University where she learned about theater and the arts. How dramatic. She is now a screenwriter in the warm and sunny LA. The last but not least writers is Tobias Iaconis. Born in Germany to an American father and German mother. Want to hear how they met! He studied the very cool English Literature at Haverford college in Philadelphia. Now he is a screenwriter and lives with his wife and son in the warm and sunny Los ...

Meet my new friend Will. He also has CF and B Cepacia. It is hard to get if you are healthy and usually comes for you if you have a weak immune systems or chronic lung diseases. That means that us CFer's definitely have to stay six feet apart because if we do not then we can kiss getting better or getting new lungs good-bye. I have to admit that my first impressions of Will were not that great but it turns out that he is super kind and sweet. We do our treatments together and I have taught him all my secret ways of taking pills. He agrees that taking pills with chocolate pudding is genius and yummy. I have made a plan to help Will get better if it is the last thing that I do. Which might be the last thing I do. Think positive Stella! Anyway, some more fun facts about Will is that he has been to tons of hospitals around the world. His mom desperately wants him to get better so she goes to every hospital that has a new CF curing medicine. Sadly, none of these have worked. ...

Hello Everybody! I'm Stella Grant and I have CF. CF makes my lungs weaker than the normal lungs. It is harder for me to breath and there is usually a lot of mucus in my lungs. I can not be near anyone else that has CF or I will die. I also can not go near anyone with any other lung disease or I will die. It is hard  to be six feet apart from those people especially when you are on a floor full of them. My best friend also has CF. We have known each other since we were six and I first started coming here for treatments. My sister Abby introduced us. His name is Poe. Even though we have always stayed six feet apart that does not mean that we stopped being friends. Whenever Poe and I are in the hospital together we video-chat with each other while we eat breakfast. We have always supported each other with everything. And before you even think it no Poe and I are not dating. He has different interests. Poe is the nicest and the most caring friend in the world. I have always been in a...